September 19, 2006
Here is another “chapter” of my story. After contracting the meningitis, I continued to become sicker and sicker. Finally I was to the point I had to go to the doctor. After several tests, I was diagnosed with Chronic Fatigue Syndrome. At this time (1990), I had never heard of this disease.
I was told that there was good news and bad news about the disease. It would not kill me was the good news. It has no cure and I would have it the rest of my life was the bad news. I was also told that since the virus was coming from my spinal fluid instead of my blood stream, the treatments normally used would not work for me.
With some help of rest and medication, I began to feel better and stronger for about four months. This was when the muscle pain and weakness were starting. Two months later I was also diagnosed with Fibromyalgia. This too is not deadly, but I will have the rest of my life. It was at this time I decided I had two choices. I could either give up or fight. I decided to fight.
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I admire your strength!
I too and dealing with a chronic condition, although mine doesn’t make me sick. So I sort of understand how you feel.
Were the initial diagnoses incorrect, or does one illness lead to another? Is it a problem with the immune system? I’ve heard about Fibromyalgia from a friend who suffers, and I understand it can be quite painful and dehabilitating. I am moved by your story and your attitude towards living. What is the treatment for your conditions?
You may have noticed Matt gone from class this week. I’m concerned that his meningitus has flared its ugly head again.
He looked so weak this morning…
I have learned to understand that life is one struggle after another. If it’s not one thing it’s another. I think thats just the cycle of life. Everyone goes through rough periods and then finally when you think your getting over it something else happens that throws you back down. Keep fighting though, things will get easier eventually.
I admire you for making the decision to fight. Staying in the fight takes courage and strength physically, emotionally, and spiritually. The toll can be great, but the end rewards are even greater. Do you have a strong support system to get you through the rough spots?